NC Chapter - Turner Syndrome Society
Next Events:
 
April 28 - Greenville NC
 
May 12 - Asheville NC
 
See Events page for further info
 
 Mission Statement...
 
"Creating Awareness, Promoting Research, and Providing Support for all persons touched by Turner Syndrome."
 
 
What Is Turner Syndrome?
 
Turner Syndrome (TS) is a chromosomal condition that describes girls and women with common features that are caused by a or partial absence of the second sex chromosome. The syndrome is named after Dr. Henry Turner, who was among the first to describe its features in the 1930's. TS occurs in approximately 1 of 2,500 females born and in as many as 10% of all miscarriages.
 
Turner Syndrome may be diagnosed throughout the life span including adulthood, if signs are subtle.
 
More information can be found at the Turner Syndrome Society of the United States website: www.turnersyndrome.org
 
 
 
 
TSS NC Chapter News
 
 
Nursing Continuing Education Program
Turner Syndrome Society has set up an online program to offer physicians and nurses one continuing education credit in an effort to educate medical personnel for earlier diagnosis of Turner Syndrome. The NC Chapter would like to take this program to school nurses in NC. We hope to target large school districts and offer a luncheon to school nurses. At the same time we will present the continuing education program and offer a Q&A afterwards. If you are interested in presenting this in your area please contact Denise at denise.culin@gmail.com.
 
 
Turner Syndrome Research Study
This study focuses on exploring the experience of living with Turner syndrome and the unmet needs adult women with Turner syndrome may have
Participants will participate in 2 individual interviews
(one in person and one over the phone)
Upon completion of the study, participants will receive a $50 gift card to Target.
To be eligible, you must
  • Be at least 18 years of age
  • Be diagnosed with Turner syndrome
  • Have access to a telephone / cell phone
If interested in participating please contact the principal investigator:
Megan Edwards, PhD, OTR/L
 
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