North Carolina Chapter - Turner Syndrome Society


1st ANNUAL APPEAL
 THANK YOU

Thank you to everyone who helped make our first annual appeal a success. We received $1710 in donations. Your support is valuable to us as we provide awareness, education, and support to all those touched by TS.


MAY MEETING

NC DNA Festival
Saturday, May 18
UNC Chapel Hill
10:00 am - 2:00 pm

UNC Chapel Hill will be having their 1st Annual DNA Festival. The festival will take place in the Great Hall at the Student Union on the UNC Chapel Hill campus. See below for directions. There will be exhibit tables with information and hands on activities on a variety of topics related to DNA. The NC Chapter will have a table to educate people about Turner syndrome. Plan to attend the festival from 10:00 - 12:00. At 12:15 pm we will meet at the entrance to the Great Hall and walk across this beautiful campus on our way to lunch. There is no cost for attending the festival. Lunch is self-pay. RSVP by May 15 to Denise at denise.culin@gmail.com. 

DIRECTIONS: The Student Union is at 3103 FPG Student Union, CB# 5210, Corner of South and Raleigh Road, Chapel Hill, NC. Go to http://ncdnaday.org/festival/ and scroll down to location. You can click on the link to get specific directions.

Be sure to bring my phone number with you in case you get lost...919-539-8064.


Look What We Were Up To in 2012
 
250+ Military Personnel received educational materials about Turner syndrome.

179 School Nurses and Social Workers were educated about Turner syndrome.

133 NC Public School Systems received educational materials.

108 Attendees participated in the 1st Annual Southeast Regional Seminar.

104 NC Chapter members participated in educational and social events.
 
 

    
Click the heart to 
  DONATE.
 
 

UNITED WAY CONTRIBUTIONS
Designate TSSUS as the recipient of your United Way contributions. Use our
United Way # 021953.

FEDERAL EMPLOYEE CONTRIBUTIONS
Designate your Combined Federal Campaign funds to TSSUS. Use our CFC# 11561.
 
Mission Statement...
The Turner Syndrome Society North Carolina Chapter represents the Turner Syndrome Society of the US. We provide support, education, and awareness in our local community.
 
What Is Turner Syndrome?
Turner Syndrome (TS) is a chromosomal condition that describes girls and women with common features that are caused by a or partial absence of the second sex chromosome. The syndrome is named after Dr. Henry Turner, who was among the first to describe its features in the 1930's. TS occurs in approximately 1 of 2,500 females born and in as many as 10% of all miscarriages.
Turner Syndrome may be diagnosed throughout the life span including adulthood, if signs are subtle.
More information can be found at the Turner Syndrome Society of the United States website: www.turnersyndrome.org
 
 
 
 
    CHECKLIST
 
You are the best advocate to keeping you or your daughter healthy. Annual checkups are an important part of managing your care. Be sure your doctor knows the recommended screening for girls and women with Turner syndrome. Click on the check mark for a list of recommendations. Print it and take it to your doctor during your next checkup.
 
 
 
 
 
Volunteers
We need your help to make our chapter a success. There are a variety of ways you can help including coordinating an event, participating in awareness presentations, preparing and sending mail outs about TS,  soliciting for donations, producing a quarterly newsletter, and more. If you are interested in helping contact Denise at denise.culin@gmail.com.
TSS NC Chapter News
 
 
Nursing  Program
 
TSSUS has put together a free one hour continuing education credit for physicians and nurses through an online video. TSSNC continues to reach out across North Carolina to educate school nurses about Turner syndrome by presenting this video to school districts and regions. More information about the continuing education credit can be found at www.TSSUS.org.
 
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